The Biobanking and BioMolecular resources Research infrastructure- European Research Infrastructure Consortium (BBMRI-ERIC) has commented on the new draft Data Protection Regulation and suggested that it must not be worded in a way that hinders research and healthcare. BBMRI-ERIC has proposed that the “purpose limitation” principle is altered and that the Regulation should not require medical research bodies to ask more than once if people consent to the use of their personal data in health research projects.

Recommendations on the General Data Protection Regulation (PDF)