The European Society of Medical Oncologists (ESMO) has issued a position paper warning that the consent requirements in the new  draft General Data Protection Regulation could jeopardise progress on cancer research. The ESMO has said that the Regulation as drafted appears to require patients to give specific consent to each new use of their data and tissue for research. It says that the Regulation should be amended to allow researchers to obtain one-off “forever” consent from patients to all research, subject to the right to withdraw the consent at any time.

Risks of the new EU Data Protection Regulation: an ESMO position paper endorsed by the European Oncology Community, July 2014